This happened to me, two years before I was diagnosed with Polycythemia Vera.
Now I know that my experience is shared with other women with MPNs. The number of MPN patients is small and I do not wish this disease on anyone. Yet there is some macabre comfort in knowing that I'm not alone.
Hopefully, when people present with abdominal venous thromboses, doctors will now add MPNs to their list of possible causes. Testing and further treatment will then commence before another adverse event occurs.
1 comment:
I work at 23andMe, a research company that believes in patient-driven research. We’re reaching out to bloggers and other patients to push MPN research forward.
We have a new way of conducting research that is much faster and simpler, and we believe in collaborating with study participants and giving their data back to them.
Our goal is to recruit 1,000 people with MPNs Together, we can make advances that will benefit the entire patient community. You can read more at https://www.23andme.com/mpn/
If anyone is interested, I’d love to send you a free saliva kit.
Best regards,
Meghan
mpn-help@23andme.com
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